Resources

This report to Congress synthesizes the results and recommendations of four years of the Sickle Cell Disease Treatment Demonstration Program (one part of NICHQ's Working to Improve Sickle Cell Healthcare project).

The purpose of this model protocol is to provide clinicians, nurses, allied health professionals, community-based organizations and public health agencies with recommendations and strategies to improve care provided to individuals with sickle cell disease and trait.

This implementation guide was developed for healthcare providers who care for individuals with sickle cell disease in hematology programs and acute care settings such as the emergency departments and day hospitals. It provides insights and lessons learned from multidisciplinary teams across the country that have succeeded in improving the management of pain episodes in emergency departments or day hospitals for both pediatric and adult patients.