Resources

Sickle Cell Congressional Report

Sickle Cell Disease Treatment Demonstration Program Congressional Report

Recommendations for improving care for people with sickle cell disease.

This report to Congress synthesizes the results and recommendations of four years of the Sickle Cell Disease Treatment Demonstration Program (one part of NICHQ's Working to Improve Sickle Cell Healthcare project). 

The Congressional Report recommendations address several different levels of action: 

  1. Recommendations for clinical delivery and public health programs 
  2. Recommendations for the design or re-design of the Sickle Cell Disease Treatment Demonstration Program 
  3. Recommendations for broad health policy
Download Read the full report
Download Read the executive summary
Download View the model protocol
Publish Date
2014
Source
NICHQ