Improving Sickle Cell Transitions of Care Through Health Information Technology
This project sought to understand if and how a technology-based tool can improve the health of individuals with sickle cell disease during care transitions and establish a set of requirements that can guide the design and development of this tool.
Who
The project engaged 100 people in 10 focus groups as well as one-on-one interviews with stakeholders including state Medicaid representatives and other relevant policy makers.
Our Role
Conducted IT developer focus groups, an environmental scan and wrote a final recommendations report, which incorporated the findings from all of the project partners’ focus group reports and the environmental scan.
Funder
The project was funded by the US Department of Health and Human Services’ Agency for Healthcare Research and Quality (AHRQ). Partners for the project include healthcare consulting firm The Lewin Group, Children’s National Medical Center, Cincinnati Children’s Hospital Medical Center and the nonprofit children’s health organization Nemours.
Project Impact
External Resources
State Perinatal Quality Collaboratives
List of PQCs funded by the Center for Disease Control and Prevention (CDC)
The Power of PQCs
Video showing the impact that PQCs have on the communities they serve. Produced by the NNPQC.
PQCs in the News
Articles in news outlets covering state PQCs, their activities, and the people that work in the collaboratives.
Patient Safety Bundles
From the Alliance for Innovation on Maternal Health. PSBs are collections of evidence-informed best practices that address clinically specific conditions in pregnant and postpartum people. The NNPQC helps provide TA and support to PQCs in adopting the core AIM Perinatal Mental Health Bundle.
Perinatal Quality Collaboratives
The CDC’s landing page for PQCs, including helpful infographics, videos, and links to help explain what PQCs are, how they work, and stories, learnings, and publications that have come out of the state PQCs.
Related Content
Resources produced by the Improving Sickle Cell Transitions of Care Through Health Information Technology project or on related topics
Meet Our Team
“In our deep organizational work to move along the Equity Systems Continuum from a Savior-Designed System to an Equity-Empowered System, we acknowledge the power of action. The potential is limitless for today’s commitments to improve the systems in which health care and public health professionals work and families receive care.”
