Improving Sickle Cell Transitions of Care Through Health Information Technology

This project sought to understand if and how a technology-based tool can improve the health of individuals with sickle cell disease during care transitions and establish a set of requirements that can guide the design and development of this tool.


Status: Complete

August 2012 until May 2014

  • Who: The project engaged 100 people in 10 focus groups as well as one-on-one interviews with stakeholders including state Medicaid representatives and other relevant policy makers.
  • Funder: The project was funded by the US Department of Health and Human Services’ Agency for Healthcare Research and Quality (AHRQ). Partners for the project include healthcare consulting firm The Lewin Group, Children’s National Medical Center, Cincinnati Children’s Hospital Medical Center and the nonprofit children’s health organization Nemours.
  • Our Role: Conducted IT developer focus groups, an environmental scan and wrote a final recommendations report, which incorporated the findings from all of the project partners’ focus group reports and the environmental scan.