healthy mom and baby

Initiatives

Content Development for Newborn Screening Clearinghouse

Develop and maintain educational information on newborn screening for the Health Resources and Services Administration’s Newborn Screening Clearinghouse website. This information will increase awareness about the critical importance of newborn screening among all stakeholders and will help parents and caregivers navigate the screening process.

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Status: Active

September 2018 to September 2023

  • Who: NICHQ is partnering with Genetic Alliance, a newborn screening content expert and leading national health organization, to develop, revise and deliver general, state-specific and condition-specific newborn screening web page content.
  • Funder: The project is funded by the Health Resources and Services Administration.
  • Our Role: NICHQ will provide overall project direction and management, including coordinating communications with HRSA, ensuring IT security compliance, and managing and maintaining a strategic workplan that facilitates the creation of timely, relevant and user-friendly web-content.

If you are interested in learning more about this project please email [email protected].