Content Development for Newborn Screening Clearinghouse
Develop and maintain educational information on newborn screening for the Health Resources and Services Administration’s Newborn Screening Information Clearinghouse website. This information will increase awareness about the critical importance of newborn screening among all stakeholders and will provide parents and caregivers with trusted information about the screening process.
Raising Awareness of Newborn Screening
Who
NICHQ is partnering with Genetic Alliance, a newborn screening content expert and leading national health organization, to develop, revise and deliver general, state-specific and condition-specific newborn screening web page content.
Our Role
NICHQ will provide overall project direction and management, including coordinating communications with HRSA, ensuring IT security compliance, and managing and maintaining a strategic workplan that facilitates the creation of timely, relevant and user-friendly web-content.
Funder
The project is funded by the Health Resources and Services Administration.
Other Information
If you are interested in learning more about this project please email [email protected].
Project Impact
External Resources
State Perinatal Quality Collaboratives
List of PQCs funded by the Center for Disease Control and Prevention (CDC)
The Power of PQCs
Video showing the impact that PQCs have on the communities they serve. Produced by the NNPQC.
PQCs in the News
Articles in news outlets covering state PQCs, their activities, and the people that work in the collaboratives.
Patient Safety Bundles
From the Alliance for Innovation on Maternal Health. PSBs are collections of evidence-informed best practices that address clinically specific conditions in pregnant and postpartum people. The NNPQC helps provide TA and support to PQCs in adopting the core AIM Perinatal Mental Health Bundle.
Perinatal Quality Collaboratives
The CDC’s landing page for PQCs, including helpful infographics, videos, and links to help explain what PQCs are, how they work, and stories, learnings, and publications that have come out of the state PQCs.
Related Content
Resources produced by the Content Development for Newborn Screening Clearinghouse project or on related topics
Meet Our Team
“In our deep organizational work to move along the Equity Systems Continuum from a Savior-Designed System to an Equity-Empowered System, we acknowledge the power of action. The potential is limitless for today’s commitments to improve the systems in which health care and public health professionals work and families receive care.”
