Content Development for Newborn Screening Clearinghouse
Develop and maintain educational information on newborn screening for the Health Resources and Services Administration’s Newborn Screening Clearinghouse website. This information will increase awareness about the critical importance of newborn screening among all stakeholders and will help parents and caregivers navigate the screening process.
September 2018 to September 2023
- Who: NICHQ is partnering with Genetic Alliance, a newborn screening content expert and leading national health organization, to develop, revise and deliver general, state-specific and condition-specific newborn screening web page content.
- Funder: The project is funded by the Health Resources and Services Administration.
- Our Role: NICHQ will provide overall project direction and management, including coordinating communications with HRSA, ensuring IT security compliance, and managing and maintaining a strategic workplan that facilitates the creation of timely, relevant and user-friendly web-content.
If you are interested in learning more about this project please email email@example.com.
TRANSCRIPT | Sickle Cell Awareness Month: Transitioning to College, Equity Considerations, and Resource Sharing
Our main story this episode highlights the need for resources for people living with sickle cell disease and strategies for transitioning from pediatric to adult care. We also reflect on National Infant Mortality Awareness Month and hear from NICHQ team member about connecting their personal and professional passion for equity. Thanks for joining us!
For our main story in this episode we are joined by Summer 2023 NICHQ Communications & Digital Strategy interns Amalia Hirschhorn-Martinez and Katie McCormick. They speak with members of the NICHQ team about our upcoming webinar focused on infant safe sleep and breastfeeding messaging and NICHQ’s continued work to ensure health professionals and the communities they serve are supported with the necessary tools and resources to create safe sleeping environments and improve breastfeeding and chestfeeding rates.
Inviting and Engaging Family Partners in Your Work
Patient and family partnerships are an essential element of health equity. By supporting patient and family voices and encouraging space for collaboration, public health professionals can help ensure shared vision and values are at the forefront of determining solutions to improve a community’s health outcomes.
Importance of Engaging Fathers in MCH Initiatives
Evidence demonstrates that fathers play a critical role in children’s health and development, beginning in the prenatal period and continuing through early childhood and adolescence. On this episode of Before Birth & Beyond, NICHQ honors Men's Health Month and Father's Day, both celebrated in June, by sitting down with two Black fatherhood experts to discuss the importance of including fathers in maternal and child health work, policy considerations to improve father engagement, and men's mental health and its impact on outcomes for children and families.
After Action Reviews Improve Systems, Strengthen Teams
The National Institute for Children's Health Quality (NICHQ) has incorporated AARs as a quality improvement tool for the past four years. Read a conversation with NICHQ Project Director Sandra Widland, MPH, and Associate Project Director Eliza Williamson about the ways NICHQ utilizes AARs in various projects and its benefits to healthcare professionals and others interested in improving systems.
Look for NICHQ at Upcoming Spring Maternal Child Health Conferences
Teams at the National Institute for Children’s Health Quality are preparing for an exciting spring 2023 conference season, where staff will give poster presentations and facilitate workshops at a variety of national maternal and child health conferences.