Content Development for Newborn Screening Clearinghouse
Develop and maintain educational information on newborn screening for the Health Resources and Services Administration’s Newborn Screening Clearinghouse website. This information will increase awareness about the critical importance of newborn screening among all stakeholders and will help parents and caregivers navigate the screening process.
September 2018 to September 2023
- Who: NICHQ is partnering with Genetic Alliance, a newborn screening content expert and leading national health organization, to develop, revise and deliver general, state-specific and condition-specific newborn screening web page content.
- Funder: The project is funded by the Health Resources and Services Administration.
- Our Role: NICHQ will provide overall project direction and management, including coordinating communications with HRSA, ensuring IT security compliance, and managing and maintaining a strategic workplan that facilitates the creation of timely, relevant and user-friendly web-content.
If you are interested in learning more about this project please email [email protected].
Supporting Indigenous Families for Improved Health Outcomes
Indigenous mothers and birthing people, fathers, partners, caregivers, and families, can speak for themselves. So, make sure seats are available – and filled – on your projects, your teams, your boards. Many projects within the MCH field have steering committees, and all should have family representation. As I hope you’ve intuited, it’s not enough to carry a message. When I think about justice, equity, diversity, and inclusion with regard to our committees, our faculty experts, or even in our improvement advisors, I have begun to ask the question: Are there people from American Indian and Alaska Native communities here?
Top NICHQ Resources for Pursuing Change in 2022
Browse a collection of NICHQ articles, webinars, and resources that your community found most valuable in 2022.
Look for NICHQ at 2022 American Public Health Association Annual Meeting
Join the National Institute for Children's Health Quality (NICHQ) on Nov. 6 at 2 p.m. for The Ever-Evolving Path to Equity in Children’s Health, a panel highlighting the evolution of NICHQ's equity work at the 2022 American Public Health Association Annual Meeting.
NAPPSS-IIN Hosting Community of Practice Meetings to address policies and Share Experiences about Safe Sleep and Breastfeeding
The NICHQ National Action Partnership to Promote Safe Sleep Improvement and Innovation Network (NAPPSS-IIN) project will continue to convene six Community of Practice (CoP) groups from September 2022 – March 2023. CoPs include Birthing Professionals, Community Advocacy Organizations, Community-Based Home Visitors, Early Childcare Providers, First Responders, and Researchers. Each group will convene twice to continue to address policies, improve skills, and learn from each other’s experiences in the areas of safe sleep and breastfeeding.
To Improve Maternal Health, We Must Depoliticize Racial Equity
Earlier this year, data from the Centers for Disease Control and Prevention (CDC) showed that maternal mortality rates increased during the first year of the pandemic, continuing a decades-long trend of increasing pregnancy-related deaths. With our Joint Organizational Commitment, NICHQ acknowledges that racism is a public health crisis and lays out our commitments to critically analyze and change our organizational systems with the goal of advancing racial equity.
Look for NICHQ at Upcoming Spring Maternal Child Health Conferences
Teams at the National Institute for Children’s Health Quality are preparing for an exciting spring 2022 conference season, where staff will provide keynote addresses, give poster presentations, and facilitate workshops at a variety of national maternal and child health conferences.