Rare Disease Day 2022 Toolkit

Each year, the last day of February is dedicated to raising awareness about rare diseases, defined as a condition that affects fewer than 200,000 people.

This Rare Disease Day, use your organizational and personal social media to advocate for equity for those born with rare diseases. NICHQ’s developed an online social media toolkit with ready-to-use graphics, images, and sample posts sharing key statistics and facts that illustrate the impact rare diseases have on more than 25 million American families and resources for public health professionals, providers, caregivers, advocates, patients, and families.

When posting, use the hashtag #RareDiseaseDay and tag @NICHQ so we can like and share your posts!