Resources
Podcasts
S2 E5 Advancing Mental Health Support, Access to Treatment, and Care for People Living with Sickle Cell Disease
Learn resources and strategies for improving mental health support for people living with SCD.
Downloadable Content
A Guide to College Transition for Sickle Cell Warriors
This helpful guide can be used by sickle cell warriors who are planning to attend college to share with their care team, caregivers, appropriate college staff, family, and friends, as they prepare to navigate a new environment and responsibilities.
Downloadable Content
Sickle Cell Awareness Month Toolkit 2024
Share these ready-to-use social media graphics and posts for Sickle Cell Awareness Month
Blog
Enhanced Support During and After Transition from Pediatric to Adult Care Needed for People Living with Sickle Cell Disease
Strategies for providers to improve the experience of care for young people living with SCD and enhance the process of transition from pediatric to adult care include educating pediatric patients early about the process of transitioning to adult care, streamlining systems for sharing medical records, and considering bias when making pain management recommendations. Learn more about each strategy, and read insights from Mikeia Green, a fourth-year medical student at UC Davis, who has successfully transitioned from pediatric to adult SCD care.
Podcasts
S1E6 Sickle Cell Awareness Month: Transitioning to College, Equity Considerations, and Resource Sharing
In honor of Sickle Cell Awareness Month, our main story this episode focuses on SCD, including what resources and supports are helpful as young people transition from pediatric to adult care.
Downloadable Content
Sickle Cell Awareness Month Toolkit 2023
Share these ready-to-use social media graphics and posts for Sickle Cell Awareness Month
Blog
3 Ways to Close Gaps in Sickle Cell Disease Care: Recommendations from NICHQ Projects
In the past several decades, clinicians, public health professionals, and those with lived experience have seen advancements in Sickle Cell Disease (SCD) treatments and research that have significantly improved outcomes and increased life expectancies for people living with SCD. For example, the FDA-approved medication hydroxyurea (HU) has been recommended as a SCD standard of care…
Downloadable Content
Sickle Cell Awareness Month Toolkit 2022
Share these ready-to-use social media graphics and posts to continue the conversation about SCD.
Blog
NICHQ Intern Spotlight: Macy Parakh
Macy Parakh (she/her) is a Marketing Communication Intern Summer 2022 at NICHQ. She is a Master of Public Health (MPH) student at Boston University School of Public Health (BUSPH). Macy is studying Community Assessment, Program Design, Implementation, and Evaluation (CAPDIE) and Maternal and Child Health (MCH). She is originally from Toronto, Canada. Macy has a…
Blog
NICHQ Intern Spotlight: Madeline D’Onfro
Madeline D’Onfro (she/her) is an intern on NICHQ’s HNCC Project this Summer. After growing up in Massachusetts, Madeline spent seven years living in Boise, Idaho and has now returned to the Northeast to pursue her Master in Public Health at Boston University. She is concentrating her studies in Community Assessment and Program Design and Maternal…