Improving Sickle Cell Disease Care
Sickle cell disease (SCD), an inherited blood disorder that affects approximately 100,000 Americans and is more prevalent in Black, African American, and Hispanic American populations. Through a federally funded Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program (SCDTDRCP), NICHQ worked with five regional teams from across the country focused on improving coordination and service delivery for individuals living with SCD, enhancing access to services, and improving and expanding patient and provider education.
NICHQ has released a comprehensive report to Congress that details findings from the Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program (SCDTDRCP) and includes recommendations. The comprehensive report is now available to read and download here.
Here’s a preview of some of the helpful sickle cell disease information that is shared in our report.