NICHQ 25th ANNIVERSARY

Celebrate 25 years of MCH improvement

Join us in highlighting NICHQ’s dedication to improving systems of care in maternal and child health since its inception. Our first 25 years were a testament to people like you—nurses, doctors, educators, public health professionals, dedicated families, mission-driven foundations and government entities—our network of partners in improvement and advocates for change.

Colorful children's hospital ward

New Look, Same Commitment

Ensuring All Children Reach Their Optimal Health

little patient uses the stethoscope on her toy

During the past 25 years, NICHQ has led nearly 100 initiatives and reached millions of children and families. Our unique approach to improving children’s health systems gives more families access to care and coordinated services, and helps more children achieve better outcomes. Together with our partners, our work has helped the country achieve real changes in children’s health.

Our mission calls us to bold action, to build capacity and drive change in communities least empowered to give their children the brightest futures—communities with a disproportionate number of children living in poverty, children devalued by racism, ableism, and other forms of bias and discrimination.

Our Impact

NICHQ’s project work approaches pressing issues with a lens of shared learning, action, and impact, with a focus on equity, reducing health disparities, and addressing root causes of inequity. From our continued efforts, more mothers and birthing people, their children, and their families have better access to care, better coordinated services across systems and sectors, and better designed solutions by involving families and their communities.

projects awarded in NICHQ’s 25 years
million dollars in funding secured from 2002-2023
of current projects have explicit equity focus

What is one way you’ve seen NICHQ grow in the last 25 years?

Staff Appreciation

NICHQ Team in Action

NICHQ’s dedicated team of experts showcase their passion and influence daily in their work to improve health systems for children and their families.

NICHQ INitiatives

Helping every child reach their optimal health

Over 25 years, NICHQ has committed to improving quality of care for children and their families by supporting health professionals

National Network of Perinatal Quality Collaboratives

NICHQ works to enhance the coordination and communication of perinatal quality collaboratives across the nation, with the ultimate goal of improving health outcomes for mothers and newborns.

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Hemoglobinopathies National Coordinating Center

NICHQ collaborates with Abt Global to manage the Hemoglobinopathies National Coordinating Center (HNCC) and provide support to sickle cell disease healthcare providers and community-based organizations.

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Supporting Healthy Start Performance Project

Healthy Start is a community-based federal program seeking to eliminate disparities in infant mortality and perinatal outcomes by working to improve systems of community care in communities with infant mortality rates at least 1.5 times the U.S. national average.

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Community-Centered Hospitals Initiative (CCHI)

The Community-Centered Hospital Initiative (CCHI) aims to address the stark and persistent disparities in the health outcomes of mothers, birthing people, and infants by strengthening collaboration and power-sharing between communities and hospitals.

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Enriching ECHO (Environmental Influences on Child Health Outcomes) cohorts with High-risk Pregnancies and Children with Disabilities

The goal of the ECHO Program is to understand the effects of a broad range of early environmental influences on child health and development. ECHO aims to enhance the health of children and adolescents through research that may help inform healthcare practices, programs, and policies and create a culture that helps teams of child health researchers work together to achieve the best results. The Enriching ECHO with Disabilities cohort seeks to advance disability inclusivity in ECHO research. NICHQ supports data collection and clinical research management for three clinical sites directly enrolling participants into the ECHO study.

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Florida CMS Learning and Action Network

By building the quality improvement (QI) capacity of specialty programs, this Learning and Action Network will grow and support a high-quality system of care in Florida that serves all children and youth with special healthcare needs (CYSHCN), regardless of insurance status and location.

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Equity Systems Continuum

In response to the impact of systemic racism and other forms of oppression on maternal and child health outcomes, this project aims to create tools for equitable change within both organizations and systems.

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UHC Catalyst Initiative: Infant Health Equity

By convening and coordinating the complementary initiatives of Healthy Start and UHC’s Catalyst Center, this project will seek to demonstrate that aligning this work and leveraging resources can identify opportunities to accelerate progress toward equity by successfully identifying and addressing social needs among Healthy Start participants and increasing utilization of services.

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Family Engagement and Leadership in Systems of Care

The purpose of the FELSC program is to enhance engagement of families of children and youth with special health care needs (CYSHCN) and individuals with lived experience, within the systems that serve them. FELSC includes two projects: 1) providing national family engagement leadership to support maternal and child health programs that serve CYSHCN and 2) providing TA to Family to Family Health Information Centers.

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Sudden Unexpected Infant Death Prevention

NICHQ works to enhance the coordination and communication of Perinatal Quality Collaboratives across the nation, with the ultimate goal of improving health outcomes for mothers and newborns.

Learn more about this project

Publications

Community infant safe sleep and breastfeeding promotion

A mixed-methods study to improve population-level health outcomes

Though breastfeeding is a protective factor against sudden unexpected infant death, motivations to breastfeed often couple with unsafe infant sleep practices. Racial/ethnic disparities are present in sudden unexpected infant death, accidental suffocation and strangulation in bed, and breastfeeding. The study aimed to investigate the relationship between community-level strategies and associated state-level outcomes for infant safe sleep and breastfeeding.

Findings

We identified two mixed insights: gaps in promotion and outcomes, and persistent disparities between infant safe sleep and breastfeeding promotion and outcomes. Findings indicate conversational approaches could improve infant safe sleep and breastfeeding promotion, outcomes, and relative disparities. Community collaboration is needed to address organizational capacity limitations in promoting infant safe sleep and breastfeeding.

What’s New from NICHQ

The Community-Centered Hospital Initiative

NICHQ was awarded $6.9M in growth funding by The Studio @ Blue Meridian to promote a new paradigm in which Communities, Hospitals, and state Perinatal Quality Collaboratives (PQCs) work together to eliminate disparities in maternal and infant mortality. This significant award will launch the Community-Centered Hospital Initiative (CCHI), developed by the NICHQ team.

Enhanced Equity Resources and Tools

NICHQ is committed to achieving equity in all forms, including race, nationality, gender identity, gender expression, sexual orientation, and ability. Get health equity updates from NICHQ including new frameworks and research, equity resources to improve your practice, insights and findings from NICHQ’s project work and more.

NICHQ Research and Evaluation Services

In addition to supporting program monitoring and evaluation, organization-level research and development, and publication efforts at NICHQ, our Department of Applied Research and Evaluation (DARE) possesses the expertise and interest to offer additional value to programs and organizations beyond NICHQ including implementation science, program evaluation, clinical research data management, and more.

Opportunities to Connect with NICHQ

NICHQ experts will be providing oral presentations and facilitating sessions at the American Public Health Association (APHA) 2024 Annual Meeting & Expo in Minneapolis. Stop by booth #1617 for opportunities to connect with NICHQ’s staff, hear about NICHQ-led projects and initiatives, and learn how you can get involved in our work.

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Spread the Word

SIDS Awareness Month Social Media Toolkit

Health professionals and advocates can share these ready-to-use graphics and posts on social media to continue the conversation about the importance of creating safe sleeping environments for infants and encourage people to learn and promote safe sleep guidelines.

SIDS Awareness Month Toolkit

Share safe infant sleep information and resources

Download the Kit

Save the Date

Weekly Observances

Five distinct weeks are celebrated during Breastfeeding Awareness Month.

  • August 1-7: World Breastfeeding Week
  • August 8-14: Indigenous Milk Medicine WeekAugust 8-14
  • August 15-21: Asian American Native Hawaiian and Pacific Islander Breastfeeding Week
  • August 25-31: Black Breastfeeding Week
  • September 5-11: Semana de la Lactancia Latina

NICHQ Insights

NICHQ’s 25th Anniversary Reading List

At NICHQ, we are committed to making breastfeeding and infant safe sleep the national norm. Check out our insights to learn how you can support this initiative.

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3 Lessons from Centering Community Voices: Safe Sleep and Breastfeeding Using a Quality Improvement Framework

Quality improvement (QI) work is driven by an interest in implementing changes that lead to improvements. In breastfeeding and safe sleep work, this can be challenging. It can be difficult to fully and accurately understand the source of maternal and child health inequities. Ultimately, professionals do not yet have a clear idea of which strategies…

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4 Strategies for Transitioning from Pediatric to Adult Care for People Living with Sickle Cell Disease

  Sickle Cell Disease (SCD), an inherited blood disorder that is more prevalent in people of African and Latinx/Hispanic descent, affects approximately 100,000 Americans, and sickle cell trait affects an estimated 2 million individuals. People living with SCD experience acute pain crises, dangerous infections, and other serious health problems that can damage every organ in…

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3 Ways to Close Gaps in Sickle Cell Disease Care: Recommendations from NICHQ Projects 

In the past several decades, clinicians, public health professionals, and those with lived experience have seen advancements in Sickle Cell Disease (SCD) treatments and research that have significantly improved outcomes and increased life expectancies for people living with SCD. For example, the FDA-approved medication hydroxyurea (HU) has been recommended as a SCD standard of care…

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4 Tips for Including & Engaging Family Partners in Your Work

Building thoughtful patient and family partnerships into QI initiatives and other projects is essential to establishing increased quality and safety in health care.   By supporting patient and family voices and encouraging space for collaboration, health care professionals can help ensure shared vision and values are at the forefront of determining solutions to improve a…

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Additional Support, Compassion Needed for Maternal Mental Health

 CDC research shows about 1 in 8 women with a recent live birth experience symptoms of postpartum depression. Estimates of the number of women affected by postpartum depression differ by age, race/ethnicity, and state.  In recognition of Maternal Mental Health Awareness Month, we’re taking some time to reflect on maternal mental health and the experiences of…

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Addressing Historic Trauma to Improve Breastfeeding and Safe Sleep Among Indigenous Families

            Kim Moore-Salas, IBCLC, enrolled member/citizen of Navajo Nation             Shawn Meyer, RN, BSN, CLC, member of Turtle Mountain Band of Chippewa Please note, we use the terms Indigenous People and Native Americans to reflect the preference of our interviewees. “Breastfeeding is a cultural tradition,”…

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Breastfeeding Takes a Village and, Too Often, Black Women Don’t Have One

“We know that for a woman to be successful at breastfeeding, it takes a village; we also know that Black women in our country are profoundly likely not to have that village in their ordinary lives,” says Khadija Garrison Adams, co-founder of Black Lactation Circle (BLaC) of Central Ohio, a community empowering black pregnant and…

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Better Sleep for Breastfeeding Mothers, Safer Sleep for Babies

When a mother or birthing person breastfeeds/chestfeeds, they release oxytocin, a hormone that soothes anxieties and helps induce a unique emotional connection to their newborn baby. Oxytocin, also known as “the love hormone,” packs a powerful punch that, while supporting healthy breastfeeding/chestfeeding, has one potentially dangerous side-effect: it can make people tired.   “New mothers are sleep-deprived…

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A Physician’s Reflections on Racism and Treating Sickle Cell Disease

There are times in life when new information prompts us to reflect on our past experiences, ask ourselves tough questions, and contemplate how we could have made different choices. Our willingness to experience those moments and how we change after having them is what could make all the difference for someone else’s quality of life….

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Children and Their Families Have a Right to Gender-Affirming Healthcare

Last fall, my husband and I received an email from our son’s Scout Leader about a new scout that would be joining our Troop. This scout lived in a neighboring town and did not feel comfortable joining their local troop due to their gender identity. Shay (name has been changed) was assigned female at birth…

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Closing the Breastfeeding Disparity Gap: Methods for Improvement

Hispanic women face a unique set of challenges when it comes to breastfeeding, including overcoming longstanding cultural beliefs, such as views on healthy baby weight, and dealing with language barriers. When compared to all other ethnic groups, Hispanic mothers are most likely to supplement breastmilk with formula within the first two days of life. One hospital…

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Continuing Sickle Cell Disease Care During the COVID-19 Pandemic

Right now, close to 100,000 people in the United States, many of whom are children, spend days experiencing acute pain, dealing with costly and uncomfortable hospitalizations, and fighting off infections – all common side effects associated with sickle cell disease (SCD). Thanks to innovative advancements in care and treatment, most people living with SCD now…

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Doula Support Improves Maternal and Child Health Outcomes, Patient and Family Engagement

In honor of World Doula Week, celebrated annually March 22-28, The National Institute for Children’s Health Quality (NICHQ) held a conversation with LaToshia Rouse, CD/PCD(DONA), owner of Birth Sisters Doula Services. Rouse currently serves as the Patient and Family Engagement Co-Chair of the National Network for Perinatal Quality Collaboratives Executive Committee and joined NICHQ’s Board…

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Exploring a Nonbinary Approach to Health

“Hi! My name is Natalia, and my pronouns are she/her/hers.” The first time I heard this introduction, I was confused. I mean, it was obvious to me that Natalia was a woman. Why were we spending time identifying the obvious? Then I remembered my friend’s child. Assigned female at birth, at four years old Emma…

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Exploring NAPPSS-IIN Project Insights and Future Visions: A Conversation About Safe Sleep and Breastfeeding

Domonique Davis: On this month’s episode of Before Birth & Beyond, we’re excited to be joined by summer 2023 NICHQ Communications and Digital Strategy interns Amalia Hirschhorn-Martinez and Katie McCormick. They will be speaking with members of the NICHQ team about our upcoming webinar, focused on infant safe sleep and breastfeeding messaging, and NICHQ’s continued…

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Family Partners Help Create Sustainable Change

Parents of children with special health needs become experts on their children’s condition in a way that doctors and administrators cannot. Their countless hours on the front line, navigating the healthcare system and other community resources, gives them invaluable insight into how these systems work (and do not work) for them. That is why NICHQ…

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Fathers: Powerful Allies for Maternal and Child Health

“Maternal and child health programs and professionals have become increasingly more cognizant of how fathers, specifically, affect their children’s health and development,” says NICHQ President and CEO Scott D. Berns, MD, MPH, FAAP. “Moving this conversation forward, and highlighting strategies that support father engagement and involvement, is a critical opportunity to improve children’s health outcomes…

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Five Strategies for Engaging Family Partners

Families have an unmatched impact on their child’s health, especially during the early years of life when children’s rapidly developing brains are laying the groundwork for their future health and wellbeing. To be the best advocates for their children, families need the right supports, whether they be access to public assistance programs like Medicaid and housing,…

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Four Steps to Address Racism’s Impact on Maternal and Child Health

In the U.S., Black babies die at more than twice the rate of white babies. This means that if the Black-white infant mortality gap was eliminated, over 4,000 babies would be saved every year. Related, the racial gap is even worse for Black mothers: they die at over three times the rate of white mothers….

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From Savior-Designed to Equity-Empowered Systems

Over the course of hundreds of years, racism was institutionalized into U.S. health care systems, propagating organizational practices and policies that marginalize and discriminate against people of color. Today, institutional racism continues to plague the health of children and families across the country. How do we pursue sustainable change? The answer starts with intentionally confronting…

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Gender-affirming healthcare consistently shown to reduce health disparities for youth

March 31 is Transgender Day of Visibility and Action, closing a week of awareness celebrating strides in visibility, advocacy, and community. Unfortunately, this year has also brought a concerning surge of anti-trans and anti-LGBTQI legislation across the United States, even as new research is published on the low regret rates from gender-affirming care. As public…

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How Clinicians and Providers Can Support Gender-Affirming Care

According to the American Academy of Pediatrics (AAP) in its policy statement Ensuring Comprehensive Care and Support for Transgender and Gender-Diverse Children and Adolescents, more gender-diverse youth and their families are presenting to pediatric providers for education, care, and referrals as a traditionally underserved population that faces numerous health disparities. The AAP acknowledges that providers…

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