Spread of Quality Improvement for Children and Youth with Special Healthcare Needs
A project to improve the health and well-being of children and youth with special health care needs and their families through building the capacity of state Title V programs—in concert with other state-based partners—to create and sustain effective community-based systems of care.
Who
The project engaged 22 teams from 17 states. An additional 18 state teams participated in an abbreviated form of training resulting from this project called Jump Start.
Our Role
Led a planned innovation program to identify successful state level strategies of enhancing healthcare and other community services, synthesized a new framework for subsequent collaborative processes, and assessed its validity through expert review and field testing. Facilitated a Breakthrough Series learning collaborative to apply the framework of the innovation program to two topic areas— epilepsy and the newborn hearing screening.
Funder
The project was funded by the US Department of Health and Human Services Administration, Maternal and Child Health Bureau.
Other Information
Through this project, NICHQ developed the Title V Index to provide a framework for Title V programs to reflect on their own capacity to make and sustain system change. The index is modeled after the Medical Home Index and consists of six care domains: 1) overall leadership; 2) partnerships across public and private sectors (including families); 3) quality improvement; 4) use of available resources; 5) coordination of service delivery; and 6) data infrastructure.
Project Impact
External Resources
State Perinatal Quality Collaboratives
List of PQCs funded by the Center for Disease Control and Prevention (CDC)
The Power of PQCs
Video showing the impact that PQCs have on the communities they serve. Produced by the NNPQC.
PQCs in the News
Articles in news outlets covering state PQCs, their activities, and the people that work in the collaboratives.
Patient Safety Bundles
From the Alliance for Innovation on Maternal Health. PSBs are collections of evidence-informed best practices that address clinically specific conditions in pregnant and postpartum people. The NNPQC helps provide TA and support to PQCs in adopting the core AIM Perinatal Mental Health Bundle.
Perinatal Quality Collaboratives
The CDC’s landing page for PQCs, including helpful infographics, videos, and links to help explain what PQCs are, how they work, and stories, learnings, and publications that have come out of the state PQCs.
Related Content
Resources produced by the Spread of Quality Improvement for Children and Youth with Special Healthcare Needs project or on related topics
Meet Our Team
“In our deep organizational work to move along the Equity Systems Continuum from a Savior-Designed System to an Equity-Empowered System, we acknowledge the power of action. The potential is limitless for today’s commitments to improve the systems in which health care and public health professionals work and families receive care.”
