Spread of Quality Improvement for Children and Youth with Special Healthcare Needs

A project to improve the health and well-being of children and youth with special health care needs and their families through building the capacity of state Title V programs—in concert with other state-based partners—to create and sustain effective community-based systems of care.


Status: Complete

October 2007 to June 2011

  • Who: The project engaged 22 teams from 17 states. An additional 18 state teams participated in an abbreviated form of training resulting from this project called Jump Start.
  • Funder: The project was funded by the US Department of Health and Human Services Administration, Maternal and Child Health Bureau.
  • Our Role: Led a planned innovation program to identify successful state level strategies of enhancing healthcare and other community services, synthesized a new framework for subsequent collaborative processes, and assessed its validity through expert review and field testing. Facilitated a Breakthrough Series learning collaborative to apply the framework of the innovation program to two topic areas— epilepsy and the newborn hearing screening.

Did You Know?

Through this project, NICHQ developed the Title V Index to provide a framework for Title V programs to reflect on their own capacity to make and sustain system change. The index is modeled after the Medical Home Index and consists of six care domains: 1) overall leadership; 2) partnerships across public and private sectors (including families); 3) quality improvement; 4) use of available resources; 5) coordination of service delivery; and 6) data infrastructure.