mother and baby at pediatrician


Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program National Coordinating Center

We work with five regional teams from across the country to improve coordination and service delivery for individuals living with sickle cell disease, enhance access to services, and improve and expand patient and provider education.


Status: Complete

September 2018 to September 2021

  • Who: The Health Resources and Services Administration launched the Sickle Cell Disease Treatment Demonstration Program more than ten years ago. In this most recent award, NICHQ supports five regional coordinating centers (RCCs) that provide coordinated, comprehensive, culturally competent and family-centered care. Teams are comprised of sickle cell centers, primary care sites, community-based organizations, parents and patients.
  • Funder: The project is funded by the Health Resources and Services Administration.
  • Our Role: Support all RCCs in developing uniform data definitions and facilitate regular data collection, reporting and analysis. Develop a model protocol that details strategies and lessons-learned for improving sickle cell disease care, deliver a comprehensive report to congress, and establish a compendium of tools and materials that shares promising practices for improving sickle cell disease support.

If you are interested in learning more about this project, email: [email protected]

Interested in Attending an Telehealth Learning Session?

Heartland and Southwest region

Heartland SCD TeleECHO
Clinic time: Third Friday of every month; 11 am - 12 pm CT
Contact: [email protected]

Midwestern region

Sickle Treatment and Outcomes Research in the Midwest (STORM) TeleECHO
Third Thursday of every month; 12 pm - 1 pm ET
Contact: [email protected]

Northeast region

Johns Hopkins Sickle Cell ECHO 
Every Wednesday, 1 pm - 2:15 pm ET
Contact: [email protected];  [email protected]
Boston & Rhode Island Pediatric Sickle Cell ECHO
First and third Tuesday of every month, 4 pm and 5 pm ET
Contact: [email protected]
Jacobi Quality Improvement ECHO
Every other Thursday, 3 pm ET
Contact: [email protected]
CBO ECHO Candice’s Sickle Cell Fund
One Thursday per month, 10 am ET
Contact: [email protected]
VCU Sickle Cell ECHO
One Wednesday per month, 12:30 pm ET
Email: [email protected]

Pacific region

Pacific Sickle Cell Regional Collaborative
Session dates, registration and recordings are available on their website: here.
contact: [email protected]

Southeast region

Education and Mentoring to Bring Access to CarE for SCD (EMBRACE)

EMBRACE Atrium Health/Duke SCD ECHO Clinic
Second and fourth Monday of each month, 12:30 to 1:30 PM
Contact: [email protected]

EMBRACE University of Alabama SCD ECHO 
Second and fourth Tuesday from 4 - 5 PM CT (adult focused for second Tuesday, and pediatric focused for fourth Tuesday)
contact: [email protected]

child and doctor

Sickle Cell Disease Training And Mentoring Program

The Health Resources and Services Administration is collaborating with the HHS Office of the Assistant Secretary for Health to deliver a new SCD Project ECHO series for primary care providers. This series, taught by hematologists using a case study-based, tele-mentoring approach, will cover basics of SCD care, such as pain management, hydroxyurea, and preventive services.

You can view the training schedule and sign up for an SCD teleECHO clinic here. Participating primary care providers will also be eligible to request on-demand consultative services from hematologists to further support SCD care and mentoring.