Disseminating Results: Missed Sickle Cell Disease Clinic Appointments and the Health Belief Model
Recent research from the Mid-South Clinical Data Research Network found that modifying components in the Health Belief Model—a widely used, theoretical model for explaining and predicting healthy behaviors—may increase the number of sickle cell disease patients who attend recommended clinical appointments. NICHQ will disseminate these findings to a network of sickle cell disease stakeholders, many affiliated with the HRSA-funded Sickle Cell Disease Treatment Demonstration Regional Collaborative Program, as well as through advocacy networks, professional organizations, and patient and family networks.
Increasing appointment attendance
Who
NICHQ is partnering with Suzette Oyeku, MD, MPH, the Division Chief of Academic General Pediatrics at The Children’s Hospital at Montefiore/Albert Einstein College of Medicine; and TaLana Hughes, a mother of an adolescent living with sickle cell disease and an experienced patient advocate.
Our Role
NICHQ will develop and implement a comprehensive dissemination strategy to share the results from the study with key stakeholders. Outreach will include creating and disseminating an easy-to-read executive summary of findings; creating a short video of stakeholders sharing their experiences; designing and delivering five webinars, tailored based on key informant interviews; and presenting at relevant conferences.
Funder
The project is funded through the Patient-Centered Outcomes Research Institute (PCORI), the organization that also funded the Mid-South Clinical Data Research Network study.
Other Information
Patients, families, and providers participated in this video where they share why it’s difficult to make appointments, and describe how missing them impacts health and well-being. https://vimeo.com/413748599 Their stories illustrate an urgent need for change. View the webinar recording discussing strategies on improving appointment attendance.
Project Impact
External Resources
State Perinatal Quality Collaboratives
List of PQCs funded by the Center for Disease Control and Prevention (CDC)
The Power of PQCs
Video showing the impact that PQCs have on the communities they serve. Produced by the NNPQC.
PQCs in the News
Articles in news outlets covering state PQCs, their activities, and the people that work in the collaboratives.
Patient Safety Bundles
From the Alliance for Innovation on Maternal Health. PSBs are collections of evidence-informed best practices that address clinically specific conditions in pregnant and postpartum people. The NNPQC helps provide TA and support to PQCs in adopting the core AIM Perinatal Mental Health Bundle.
Perinatal Quality Collaboratives
The CDC’s landing page for PQCs, including helpful infographics, videos, and links to help explain what PQCs are, how they work, and stories, learnings, and publications that have come out of the state PQCs.
Related Content
Resources produced by the Disseminating Results: Missed Sickle Cell Disease Clinic Appointments and the Health Belief Model project or on related topics
Meet Our Team
“In our deep organizational work to move along the Equity Systems Continuum from a Savior-Designed System to an Equity-Empowered System, we acknowledge the power of action. The potential is limitless for today’s commitments to improve the systems in which health care and public health professionals work and families receive care.”
