Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program National Coordinating Center
We work with five regional teams from across the country to improve coordination and service delivery for individuals living with sickle cell disease, enhance access to services, and improve and expand patient and provider education.
Improving SCD treatment
Who
The Health Resources and Services Administration launched the Sickle Cell Disease Treatment Demonstration Program more than ten years ago. In this most recent award, NICHQ supports five regional coordinating centers (RCCs) that provide coordinated, comprehensive, culturally competent and family-centered care. Teams are comprised of sickle cell centers, primary care sites, community-based organizations, parents and patients.
Our Role
Support all RCCs in developing uniform data definitions and facilitate regular data collection, reporting and analysis. Develop a model protocol that details strategies and lessons-learned for improving sickle cell disease care, deliver a comprehensive report to congress, and establish a compendium of tools and materials that shares promising practices for improving sickle cell disease support.
Funder
The project is funded by the Health Resources and Services Administration.
Other Information
If you are interested in learning more about this project, email: [email protected].
Project Impact
External Resources – Telehealth Learning Sessions
Heartland and Southwest region
Heartland SCD TeleECHO
Clinic time: Third Friday of every month; 11 am – 12 pm CT
Midwestern region
Sickle Treatment and Outcomes Research in the Midwest (STORM) TeleECHO
Third Thursday of every month; 12 pm – 1 pm ET
Southeast region
Education and Mentoring to Bring Access to Care for SCD (EMBRACE)
EMBRACE Atrium Health/Duke SCD ECHO Clinic
Second and fourth Monday of each month, 12:30 to 1:30 PM
EMBRACE University of Alabama SCD ECHO
Second and fourth Tuesday from 4 – 5 PM CT (adult focused for second Tuesday, and pediatric focused for fourth Tuesday)
Northeast region
Johns Hopkins Sickle Cell ECHO
Every Wednesday, 1 pm – 2:15 pm ET
Boston & Rhode Island Pediatric Sickle Cell ECHO
First and third Tuesday of every month, 4 pm and 5 pm ET
Jacobi Quality Improvement ECHO
Every other Thursday, 3 pm ET
CBO ECHO Candice’s Sickle Cell Fund
One Thursday per month, 10 am ET
VCU Sickle Cell ECHO
One Wednesday per month, 12:30 pm ET
Related Content
Resources produced by the Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program National Coordinating Center project or on related topics
Meet Our Team
“In our deep organizational work to move along the Equity Systems Continuum from a Savior-Designed System to an Equity-Empowered System, we acknowledge the power of action. The potential is limitless for today’s commitments to improve the systems in which health care and public health professionals work and families receive care.”
