Long-Term Endotypes of Prematurity Associated Respiratory Disease (LEOPARD)
The LEOPARD study is a genomic meta-analysis examining long-term respiratory and cardiac outcomes among premature infants.
Tracking respiratory and cardiac outcomes among children who were premature infants.
The LEOPARD study is a genomic meta-analysis examining long-term respiratory and cardiac outcomes among premature infants. Led by Lurie Children’s Hospital of Chicago, LEOPARD is an ancillary study of ECHO (Environmental Influences on Child Health Outcomes) and incorporates retrospective data from three ECHO cohorts. In addition, LEOPARD is prospectively collecting follow-up data from school-age children who previously participated in one of three studies of premature infants. NICHQ serves as the Data Coordinating Center for LEOPARD and provides ongoing project management support.
Who
NICHQ and Lurie Children’s Hospital
Our Role
NICHQ designed and maintains the REDCap database used for prospective data collection and oversees all data management activities. NICHQ will harmonize data across the six contributing studies and produce the master clinical dataset used to address LEOPARD’s study aims.
Funder
Subcontractor to Lurie Children’s Hospital, Funded by the NIH
Project Impact
External Resources
State Perinatal Quality Collaboratives
List of PQCs funded by the Center for Disease Control and Prevention (CDC)
The Power of PQCs
Video showing the impact that PQCs have on the communities they serve. Produced by the NNPQC.
PQCs in the News
Articles in news outlets covering state PQCs, their activities, and the people that work in the collaboratives.
Patient Safety Bundles
From the Alliance for Innovation on Maternal Health. PSBs are collections of evidence-informed best practices that address clinically specific conditions in pregnant and postpartum people. The NNPQC helps provide TA and support to PQCs in adopting the core AIM Perinatal Mental Health Bundle.
Perinatal Quality Collaboratives
The CDC’s landing page for PQCs, including helpful infographics, videos, and links to help explain what PQCs are, how they work, and stories, learnings, and publications that have come out of the state PQCs.
