Collaborative to Improve Care for Children with Autism Spectrum Disorder

Status: Complete

WHAT: A quality improvement initiative to make care for children with autism spectrum disorder (ASD) better in three areas: constipation, insomnia and wait time for treatment. The collaborative expands the work of the Autism Intervention Research Network.

WHO: Healthcare teams at 14 Autism Treatment Network (ATN) sites across North America.

WHEN: September 2011 to February 2014

FUNDER: The Autism Treatment Network (ATN), a program supported by the national organization Autism Speaks, through a grant from the Autism Intervention Research Network on Physical Health (AIR-P).

NICHQ'S ROLE: Led a Breakthrough Series learning collaborative  to apply quality improvement methodology including rapid tests of change to implement the ATN/AIR-P Care Model and improve care for children with autism spectrum disorders. Oversaw team’s use of algorithms to provide treatment for constipation and insomnia, development of a standardized review of systems to identify symptoms, and implementation of a monitoring protocol for patients taking atypical antipsychotic medications.

Project Videos

Title: Working with Parents to Improve Care for Children with Autism
Produced By: NICHQ
Source

Title: Parent Story - "He's Just a Boy"
Produced By: NICHQ
Source

Woman helping two young girls do their class work

Project Publication

Lajonchere C, Jones N, Coury DL, and Perrin JM. Leadership in Health Care, Research, and Quality Improvement for Children and Adolescents With Autism Spectrum Disorders: Autism Treatment Network and Autism Intervention Research Network on Physical Health. Pediatrics 2012; 130(S2): S62-S68. SourceExternal Link