Top Parent Engagement Stories from 2016

Posted December 28, 2016 by Josh Grant

Family Camping Trip
Working with parents in our projects helps us serve families who need support.

Families are who motivate us to seek changes and improvement in the systems that provide and support children’s health. The ultimate objective of all of NICHQ’s initiatives is to ensure that every family can access high-quality care and necessary services for their specific needs.

That makes it all the more important that we hear from parents at every stage of our work. Throughout the year, we’ve shared the journeys and thoughts of a few families as they’ve experienced the health and healthcare systems in unique ways and from various perspectives, both as private patients and, in some cases, as health professionals themselves. Please enjoy their stories and what motivates them to continue partnering with NICHQ to improve children’s health systems.

Why I Participate: By Parent Partner Mercédez Cahue

Parent partners are crucial team members for any improvement project, especially ones that affect in-patient services for new moms. Mercédez Cahue became a parent partner for one of the hospitals participating in the Texas Ten Step Star Achiever Breastfeeding Learning Collaborative (TBLC), giving providers a patient’s perspective on current breastfeeding support. Her guidance, as well as her outreach to other moms, ensures that all changes and ideas reflect mothers’ needs and choices. Read more

Family Voices: Using QI for Families

Shu-Chiung Chou, DrPH, MSN, is a former nurse who enrolled in our ABC’s of Quality Improvement (QI) course to become a better caregiver for her daughter, who has special healthcare needs. Chou learned the basic principles of QI such as how to create driver diagrams and Plan-Do-Study-Act cycles, applying them to how she coordinates care for her daughter. Read more

Why I Participate: TaLana Hughes, MPH

As the executive director of the Sickle Cell Disease Association of Illinois, TaLana Hughes works to connect patients with sickle cell disease and their families to expert care and necessary resources. She’s also working to help improve national systems as a faculty member of the Sickle Cell Disease Treatment Demonstration Program (SCDTDP). But her drive to make these improvements and help this underserved community comes from the lack of support she received when her daughter was diagnosed with SCD shortly after being born. Read more

Second-Time Moms Appreciate Hospital Changes to Support Breastfeeding
Good Samaritan Medical Center in West Islip, New York, changed a great deal about its maternity care and breastfeeding practices as part of the New York State Breastfeeding Quality Improvement in Hospitals (NYS BQIH) Collaborative in the span of two years. Some of the moms who returned to the facility to deliver their second children were impressed with policies like rooming-in and immediate skin-to-skin contact that were enacted since the births of their first children. Read More


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