Rare Diseases Deserve Our Attention

Between 25 and 30 million Americans, many of them children, are living with a rare disease. The complex challenges facing these children and families deserve attention and demand innovative responses. NICHQ President and CEO Scott D. Berns, MD, MPH, FAAP, understands this need, perhaps better than anyone. His connection to the rare disease community is both…

Hearing a Chance to Improve: QI’s Impact on State Audiology Services

Hearing loss is a common birth defect in the United States, affecting one to three babies per 1,000 live births. In Louisiana, most children receive hearing screenings at birth, but the number receiving appropriate follow-up care when diagnosed with potential hearing loss was only 38 percent a few years ago. The state’s Early Hearing Detection…