NICHQ Employee Spotlight: Karen Chustz

Full name and title: Karen Chustz, MSW Job Title: Senior Project Director (Supporting Healthy Start Performance Project)  Time with NICHQ: 1.5 months (Joined NICHQ October 2024)  How has your background led you to join a children’s health organization?  My journey to join NICHQ has been influenced not only by my professional training and experience as a macro-focused…

Enhanced Support During and After Transition from Pediatric to Adult Care Needed for People Living with Sickle Cell Disease

Strategies for providers to improve the experience of care for young people living with SCD and enhance the process of transition from pediatric to adult care include educating pediatric patients early about the process of transitioning to adult care, streamlining systems for sharing medical records, and considering bias when making pain management recommendations. Learn more about each strategy, and read insights from Mikeia Green, a fourth-year medical student at UC Davis, who has successfully transitioned from pediatric to adult SCD care.

Preparing Children with Special Healthcare Needs for Transition of Care 

Health care transition is the process of changing from a pediatric to an adult model of health care. There are significant differences between adult and pediatric health care model, which can make transitioning from pediatric to adult care challenging for any young person, but those challenges are often amplified for children with special healthcare needs. The…

NICHQ Prepares for Upcoming Spring Maternal Child Health Conference

  The National Institute for Children’s Health Quality (NICHQ) is preparing for an exciting spring 2023 conference season, where staff will give poster presentations and facilitate workshops at a variety of national maternal and child health conferences. Several project teams will represent NICHQ at the 2023 Association of Maternal Child Health Programs (AMCHP) Annual Conference, which…

Doula Support Improves Maternal and Child Health Outcomes, Patient and Family Engagement

In honor of World Doula Week, celebrated annually March 22-28, The National Institute for Children’s Health Quality (NICHQ) held a conversation with LaToshia Rouse, CD/PCD(DONA), owner of Birth Sisters Doula Services. Rouse currently serves as the Patient and Family Engagement Co-Chair of the National Network for Perinatal Quality Collaboratives Executive Committee and joined NICHQ’s Board…

Supporting Indigenous Families for Improved Health Outcomes

NOTES ON LANGUAGE: A variety of language is used to describe the people who first inhabited the North American continent before colonizers arrived in the 15th century, continuing through the annexation of Hawai’i in 1898. What vocabulary we use depends on whether we are quoting someone else’s language, talking about legal matters, statistics, or data…

NICHQ Intern Spotlight: Macy Parakh

Macy Parakh (she/her) is a Marketing Communication Intern Summer 2022 at NICHQ. She is a Master of Public Health (MPH) student at Boston University School of Public Health (BUSPH). Macy is studying Community Assessment, Program Design, Implementation, and Evaluation (CAPDIE) and Maternal and Child Health (MCH). She is originally from Toronto, Canada. Macy has a…