NICHQ conducted the 2021 Annual Assessment to understand projects' organizational structures, satisfaction with the TASC, programmatic needs, progress toward benchmarks and key objectives, data capacity, and progress towards sustainability. Like the Needs Assessment from 2019 and the 2020 Annual Assessment, this year’s Annual Assessment sought to identify salient programmatic activities for the TASC. In this report, we describe the Annual Assessment’s methods and results, synthesize findings, and describe next steps for the TASC.
This Rare Disease Day, use your organizational and personal social media to advocate for equity for those born with rare diseases. NICHQ's developed an online social media toolkit with ready-to-use graphics, images, and sample posts sharing key statistics and facts that illustrate the impact rare diseases have on more than 25 million American families and resources for public health professionals, providers, caregivers, advocates, patients, and families.
The official theme for 2022 focuses on the importance of Black Health and Wellness and acknowledges the legacy of Black scholars and medical practitioners in Western medicine, as well as other health and wellness workers, such as birthworkers, doulas, midwives, naturopaths, and herbalists. Share these ready-to-use social media graphics and posts to continue the conversation about our nation’s history and its impact on modern-day health outcomes in the Black community.