Resources

This action kit is designed to reduce loss to follow-up for newborns after their initial hearing screening. The kit offers solutions for engaging families and enrolling newborns in early intervention services. The ideas can help audiologists and EHDI offices improve outcomes for infants with hearing loss.

This report describes provides recommendations for how best to create a healthcare system in which all children receive care that is safe, effective, efficient, timely and family centered, regardless of background or cultural differences.

In the Spread of Quality Improvement for Children and Youth with Special Healthcare Needs: An integrated Systems Strategy for Building the Title V Infrastructure project, NICHQ was tasked with improving the health and well being of children and youth with special healthcare needs and their families through building the capacity of state Title V programs to create and sustain effective community-based systems of care for this population. This report documents NICHQ's learnings and impact.

The purpose of this model protocol is to provide clinicians, nurses, allied health professionals, community-based organizations and public health agencies with recommendations and strategies to improve care provided to individuals with sickle cell disease and trait.

This implementation guide was developed for healthcare providers who care for individuals with sickle cell disease in hematology programs and acute care settings such as the emergency departments and day hospitals. It provides insights and lessons learned from multidisciplinary teams across the country that have succeeded in improving the management of pain episodes in emergency departments or day hospitals for both pediatric and adult patients.

This report presents eight stories about healthcare professionals who used their voices to advocate for policy changes designed to improve the health of children and families.

Partnerships are at the heart of improvement initiatives. In these five short videos, leadership expert Gwen Webber-McLeod, president and CEO of Gwen Inc., helps you learn how to research potential partners and confirm mission alignment, ensure accountability while celebrating successes, and preserve your partners' energy. 

Effective leadership can make or break an improvement initiative. In these four short videos, leadership expert Gwen Webber-McLeod, president and CEO of Gwen Inc., provides strategies for improving your leadership style. Follow along as she guides you on managing communication, dealing with dysfunction and learning to practice self-care.