Download our Resource Brochure for links to our most popular resources
The Roadmap to Inviting, Engaging, and Including Patient/Family Partners in Quality Improvement and Other Related Initiatives provides a framework for effective engagement and inclusion of a Patient/Family Partner (PFP) onto a work group, advisory council, Quality Improvement (QI) team, or other clinical or health systems initiatives.
Through NICHQ's 2017-2021 Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program (SCDTDRCP), we worked with five regional teams from across the country to improve coordination and service delivery for individuals living with sickle cell disease, enhance access to services, and improve and expand patient and provider education.
In our final report, we provide key takeaways and recommendations from our multiyear Early Childhood Comprehensive Systems Collaborative Improvement and Innovation Network (ECCS CoIIN) initiative to improve early childhood service systems in 12 states to increase age-appropriate developmental skills among 3-year-old children and reduce developmental disparities.
