Resources
Downloadable Content
Cultivating Internal Change Agents for Medical Home Transformation
Using the Practice Transformation Facilitator (PTF) model in medical home transformation.
Blog
4 Steps for Starting a Patient and Family Advisory Council
A cross between a focus group and an improvement team, a patient and family advisory council (PFAC) is an effective way for a healthcare facility—be it a primary care practice or a hospital—to engage customers in improving the quality of care provided. The PFAC platform enables providers and patients to work side-by-side to discuss and…
Downloadable Content
Family Engagement Guide
This guide helps pediatricians work with families as improvement partners.
Blog
Why and How to Include the Patient-Family Voice in a Medical Home
At a recent medical appointment, my teenage daughter and I were offered an opportunity to complete a patient experience survey. My daughter was eager to provide feedback and happily answered the questions thoughtfully. She likes that movies play in the waiting room and doesn’t like when wait times in the exam room are long. She…
Downloadable Content
Sickle Cell Disease Treatment Demonstration Program Model Protocol
Recommendations and strategies to improve care for individuals with sickle cell disease and trait.
Publications
Using Patient Navigators to Help Adults with Sickle Cell Disease Obtain a Primary Care Home
Patient navigation program aids SCD patients in overcoming barriers to adult primary care.
Publications
Sickle cell disease pain management and the medical home
This article provides a framework of pain management within the PCMH model.
Downloadable Content
Creating a Patient and Family Advisory Council
Step-by-step guidance on how to effectively engage family perspectives.
Publications
Review of Quality Measures of the Most Integrated Health Care Settings for Children and the Need for Improved Measures: Recommendations for Initial Core Measurement Set for CHIPRA
Better measures of care integration, care coordination, and integration of mental, developmental, and physical health into a comprehensive care system are high-priority topics for measure development.
Downloadable Content
California Medical Education Collaborative Report
Redesigning pediatric residency training to improve care for youth with special healthcare needs.