Collaboration to Improve Care for Children with Cystic Fibrosis
The mission of the Cystic Fibrosis (CF) Collaborative was to implement a comprehensive delivery system for care of children and adolescents with CF that was efficient, effective, safe, family centered and evidence-based in order to maximize longevity and quality of life.
Who
16 participating cystic fibrosis centers
Our Role
With participating centers, studying the most authoritative scientific information to learn how to put that knowledge into practice, and make sustainable improvements in care delivery and medical outcomes for each center.
Funder
This project was sponsored by the Cystic Fibrosis Foundation.
Project Impact
External Resources
State Perinatal Quality Collaboratives
List of PQCs funded by the Center for Disease Control and Prevention (CDC)
The Power of PQCs
Video showing the impact that PQCs have on the communities they serve. Produced by the NNPQC.
PQCs in the News
Articles in news outlets covering state PQCs, their activities, and the people that work in the collaboratives.
Patient Safety Bundles
From the Alliance for Innovation on Maternal Health. PSBs are collections of evidence-informed best practices that address clinically specific conditions in pregnant and postpartum people. The NNPQC helps provide TA and support to PQCs in adopting the core AIM Perinatal Mental Health Bundle.
Perinatal Quality Collaboratives
The CDC’s landing page for PQCs, including helpful infographics, videos, and links to help explain what PQCs are, how they work, and stories, learnings, and publications that have come out of the state PQCs.
Related Content
Resources produced by the Collaboration to Improve Care for Children with Cystic Fibrosis project or on related topics
Meet Our Team
“In our deep organizational work to move along the Equity Systems Continuum from a Savior-Designed System to an Equity-Empowered System, we acknowledge the power of action. The potential is limitless for today’s commitments to improve the systems in which health care and public health professionals work and families receive care.”
